“In 20+ years of special needs parenting, I’ve read many books and essays, but I’ve never read anything that captured the emotional complexity the way this piece does.” (Nina)
"Such a necessary brave piece. I have forwarded to my pediatric palliaitive friends so it can be shared in that community.” (Alex)
“This is everything. You spoke for so many, you gave us a voice as parents.” (Mary)
“As both a mom of a very young child and a young doctor on a path of becoming a pediatrician, I cannot begin to explain what a profound impact this essay has had on me.” (Lu)
“Raw and gut-wrenching and beautiful in its honesty. What a feat to write one’s truth.” (Ann)
“Through your words I’ve gained additional insight on how to usefully love my friend and her disabled baby boy.” (Aurelia)
“Beautiful and raw… My initial thought was, ‘those are things we should never talk about.’” (Kelly)
“I’m so moved, I know I will never be who I was before I read this.” (Rusty)
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